Prader-Willi Menus are now available
Prader Willi Syndrome
Prader -Willi Syndrome (PWS) is a genetic disorder occurring in 1:12,000-15,000 births in the United States. It can occur in males or females and any race. Individuals with Prader – Willi Syndrome have constant sense of hunger that usually begins after the first year of life. Only a medical doctor can correctly diagnosis a person with Prader Willi Syndrome.
Prader Willi Syndrome individuals must control their diet and should be closely supervised at all times. PWS individuals should follow a strict low calorie diet plan in order to control their weight. Typically an adult PWS individual can only eat about 1,000-1,200 per day because they have low caloric needs. PWS individuals only need about 60% of a typical person’s diet. PWS individuals have low muscle tone and are often inactive which contributes to their low dietary intake need. Individuals with PWS should supplement their diet with a multi vitamin supplement to ensure they are meeting their recommended daily allowances. Mega doses of vitamins are not recommended because some PWS individuals have had adverse reactions with higher doses. PWS individuals should ask a doctor or registered dietitian what is the right vitamin supplement for them.
Individuals with Prader –Willi Syndrome must closely monitor their portions in order to control their weight. PWS individuals who do not control their diets can become morbidly obese putting them at risk for diabetes, hypertension, heart disease, cancer and other obesity related diseases. The PWS syndrome diet is designed a little different than the typical American diet. PWS syndrome still have the same main food groups-grains, vegetables, fruit, meat and milk but PWS syndromes are offered more vegetable than grains than the typical American diet. The reasoning behind offering more vegetable is to offer more volume and fiber in the diet. Individuals with PWS often have trouble with constipation.
For Several years, I have had the pleasure of working with individuals with Prader Willi Syndrome. Recently, I have developed menus to better meet the needs of individuals with Prader Willi Syndrome. The menus average a daily calorie intake of 1000-1200 calories daily. The menus are written in two-six week cycles. This allows for variety and seasons. The two cycles are winter and summer. Each week comes with a weekly grocery list. The menus come with my group home cookbook. The cookbook has over 500 easy, simple, and economical recipes.
The menus are broken down into weekly production sheets. The sheets give the portion size in two different ways. You can measure using standard measuring cups or weight items. Since so mush of the diet is composed of vegetables and fruits I highly recommend you purchase a food scale (one that can measure in grams) to measure your foods. It is hard to measure fresh broccoli or grapes precisely using measuring cups because of their odd shapes.
Cost: $139.95 plus shipping and handling
Includes: 12 weeks of PWS menus, grocery lists, production sheets and Group Home Cookbook
Allow 2-3 weeks for delivery
IMPORTANT: Before the menus can be shipped a written agreement much be signed by the purchased and returned. To download the agreement click here.
Current Research Study:
University of California at Irvine is looking for participants for a study on Prader Willi Syndrome:
Click here to find out more information.